Help Shape Education and Support in IBD: miGut-Health Survey
We invite you to share your perspective in a survey on the education and support people living with Inflammatory Bowel Disease (IBD) need to manage their health and diet.
The survey is part of the miGut-Health project, Eu funded project, in with IFCCA is a proud partner. It will help develop a practical guide, known as the Blueprint, to support people living with IBD in taking an active role in their health and care.
Who Can Participate
We especially welcome contributions from clinicians and researchers with direct experience in IBD care.
The survey also welcomes perspectives from:
People living with IBD
Family members and caregivers
Patient advocates and patient organisation representatives
Policymakers and health-system representatives
What the Survey Involves
The survey is an online questionnaire that takes approximately 20–30 minutes.
It builds on group discussions held across Europe with people living with IBD, healthcare professionals and other experts. You will be asked to rate:
How important the proposed ideas for education and support are
How widely they are already available in your country or healthcare setting
Topics include practical dietary guidance, emotional support, communication with healthcare teams and access to reliable information.
There are no right or wrong answers—what matters is your perspective.
Participation is voluntary, and you may stop at any time. Data will be processed in accordance with GDPR.
Why Your Perspective Matters
Your answers will help identify which priorities should be included in the Blueprint. Bringing together professional knowledge and personal experience will help the guide reflect the needs of people living with IBD and those involved in their care.
Survey Deadline
Please complete the survey by 9 October 2026.
Please share the survey with your members, colleagues and relevant networks.
For questions about the study, contact Prof. Guendalina Graffigna.
