Survey on people with IBD aged 60 and over

This research was being conducted by the European Federation of Crohn's & Ulcerative Colitis Associations (EFCCA) and the Leids Universitair Medisch Centrum (LUMC).

We are pleased to finally share the results of our survey on IBD in people aged 60 and over.

Following the launch of our survey exploring how Inflammatory Bowel Disease affects people aged 60+, their priorities, quality of life, and what truly matters in their care, we are proud to share that the results have now been officially published in the Journal of Clinical Gastroenterology.

The study, titled “Therapy Goals and Well-being in Older Patients With Inflammatory Bowel Disease,” was conducted in close collaboration with the research team at Leiden University Medical Center (LUMC) and coordinated by International Federation of Crohn's & Ulcerative Colitis Associations (IFCCA , former EFCCA) as part of the IBD Has No Age campaign.

Nearly 2,000 people with IBD aged 60 and over from 34 countries took part. The findings show that reducing fatigue, improving mood, and controlling bowel symptoms are the top priorities for older people living with IBD. They also highlight the importance of staying physically active and socially engaged to support well-being.

We would also like to thank our Dutch member association, whose engagement and support were instrumental in making this research possible. From survey design and translations to patient recruitment and data collection, this work ensured that patient priorities were central to the research process.