Strategic Areas

IFCCA supports the global IBD community through five strategic areas: awareness raising, networking, advocacy, research & development, and empowerment.

Our work connects people, drives change, and advances understanding of IBD worldwide — from influencing policy to strengthening patient voices and building knowledge that shapes the future of care.

Discover what we do in each strategic area below.

NETWORKING sanja frkanec NETWORKING sanja frkanec

IFCCA General Assembly 2026: Strengthening Our Global Community

On 6 June 2026, representatives from 39 patient associations gathered in Brussels for the IFCCA General Assembly 2026, the Federation's most important annual meeting. Bringing together member organisations from across the world, the Assembly provided an opportunity to reflect on the past year, strengthen international collaboration and shape the future of IFCCA.

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EMPOWERMENT sanja frkanec EMPOWERMENT sanja frkanec

We are proud to share the Let’s Talk Endoscopy Lexicon, a new patient-focused resource developed in collaboration with patients, healthcare professionals, and engagement experts, together with our partner Johnson & Johnson.

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NETWORKING sanja frkanec NETWORKING sanja frkanec

IFCCA Conference at ECCO Congress 2026

On 18 February 2026, IFCCA hosted a conference during ECCO Congress in Stockholm, bringing together patient representatives, healthcare professionals and key stakeholders to discuss the role of patient perspectives in Health Technology Assessment (HTA).

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EMPOWERMENT Reinhard Steger EMPOWERMENT Reinhard Steger

We are pleased to announce the publication of the ENGAGE-IBD Personalised Health Engagement Guide, a new resource developed within the EU-funded miGut-Health project in collaboration with patients, clinicians, and engagement experts. This practical, patient-centred guide offers clear and accessible support for people living with Crohn’s disease and Ulcerative Colitis, helping them manage symptoms, make informed treatment decisions, and navigate daily life with IBD.

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